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7/6/2005 Vol. 2, No. 11

Professional Practice
 

Resident Chaplain Kristen E. Larson on offering forgiveness and hope

God on Wheels or with a Limp:
Pastoral Care from the “Disabled”Perspective

“Watch out! Here comes Scooter Girl!”

Yes, this is my nickname on one of the units at Methodist Hospital. I was born with the physical disability known as arthrogryposis (meaning “stiff joints”) and congenital muscular dystrophy (meaning “being born with weak muscles”).

Have you ever wondered…how does a chaplain function while dealing with personal physical challenges? Thus, how does a chaplain provide effective pastoral care while possibly enduring similar difficulties to that of the patient?

CREATIVITY –that is the primary tool!

Regarding the use of my scooter, I utilize it primarily when serving as the sole on-call chaplain. This can involve much physical movement between units, which results in easy exhaustion for me. When awakened during a night shift, I usually have to arrive at the situation in a quick manner; therefore, I frequently drive my scooter sock-footed to save the time of putting on my shoes and braces.

In regards to actually giving pastoral care, when entering the room on my scooter, I find myself usually offering care from the end of the bed so as to not shuffle furniture nor interrupt communication with visitors. While I may not be able to physically touch the patient from this perspective, I have discovered that I can usually hold direct eye contact with them as well as place my hand at the end of the bed when offering prayer.

Furthermore, when needing to rest from walking awhile, I sometimes sit next to a visitor to offer him or her care. This permits me the opportunity to reach the hurting individual both physically and emotionally as well as not interrupt my mission of pastoral care.

Using opportunities of needing personal assistance, I find myself checking on staff while getting needs met. An example –when I request assistance with putting on a gown before speaking with a patient in isolation. While he or she ties the gown, I check how the staff member’s day is proceeding.

Most importantly, as a pastoral caregiver with personal physical challenges, I have found that my work on the units offers continuous hope and encouragement to both the staff and the patients. Specifically, I recall offering hope to a mother with a son born with club feet by walking into the room and speaking to her about my own experience with the same diagnosis.

Theologically, my role as a pastoral caregiver reminds me of an incident in Richard Bach's Illusions. A physically challenged man approaches Donald, the “messiah,”for an airplane ride. Here, the man suddenly and easily climbs out of his wheelchair and into the plane. In this situation, Donald serves as a healing presence by offering the man a period of liberation. Similarly, John 8:1–11 emphasizes the importance of offering liberty, not judgment, as Christ offered forgiveness and hope for the adulteress when He disrupted the threats to stone her.

I try to minister righteously for the moment, providing hope for the future. My model of pastoral care is summed up in the following well-known quote: “Do not lead, for I may not follow. Do not follow, for I may not lead. Walk beside me, and be my friend.”Basically, I bring spirituality and healing to staff and patients with a new perspective –God on wheels or with a limp!



While serving as a Resident Chaplain under the CPE supervision of Rev Yoke-Lye Jerrymia Lim at Clarian Health Partners in Indianapolis, Indiana, Kristen E. Larson discovered and owned her voice as a pastoral advocate for the disabled, which is a culture of its own and very rarely is being recognized and affirmed in the pastoral care field. She has received her basic and advanced training in Critical Incident Stress Management and is currently pursuing her ordination with Church of God (Anderson, Indiana) as well as Board Certification with the APC. She was born with the fully-identified diagnosis of arthrogryposis multiplex congenita.

 

Do you have thoughts about professional practice you’d like to share with your colleagues? Send an e-mail info@PlainViews.org.

 

 

 

Advocacy
   

The Rev. Steve Rice on proposed reforms for spiritual care


HOSPICE Spiritual Care Providers….This is for YOU!

The CMS (The Centers for Medicare and Medicaid Services - a Federal agency within the U.S. Department of Health and Human Services) recently issued proposed reforms to the Medicare Benefit that will affect how spiritual care is provided in hospice organizations.

As Chaplains/Spiritual Care providers in hospice we are invited to review the new proposals to the Conditions of Participation (COP) and make comments to a federal committee by July 26, 2005.

Click HERE to download a pdf file.

Highlights of Proposed Changes for Spiritual Care:

1. I believe the most significant proposed requirement in hospice will be the inclusion of Spiritual Care Counseling services as a CORE SERVICE (Proposed 418.64, page 30850, 51). Spiritual counseling joins the medical and “medical social services”disciplines as essential and required in hospice assessment and delivery of hospice/palliative care. What does this mean? I serve a hospice with a census of 200. Over one year ago we provided spiritual care to those patients and families based on the referral of our nurses or social workers. We followed 30-35% of the caseload. In this past year we began viewing spiritual care as a core service and assumed an initial assessment by a professional spiritual care provider. As a result of this change in philosophy, today we follow 85 to 90% of our patients and families. That is the good news. The bad news is we have not yet increased our number of spiritual care providers. Spiritual care is an essential part of dying. Now Medicare is saying we agree.

2. A second area to note is the section preceding the Core Services (pages 30844-30851) Basically, spiritual care has to be part of the individualized plan of care, assessment and outcome measure. The assessment needs to be completed in four calendar days after the patient elects the hospice benefit! (page 30845)

3. The weakest section has to do with Personnel Qualifications for Licensed Professionals (418.114, page 30859). The Committee, working with NHPCO, has a difficult time defining the qualifications for a professional spiritual care counselor/chaplain for hospice. One sentence does state “these [professionals] must be licensed, or certified or registered to practice by the State …”It is easy to define a state licensed individual (social worker or speech pathologist) or a certified nurse. Here is an area where we can educate the Committee as well as hospice and palliative care programs. If I interpret these qualifications correctly, then a salesperson friend, who, for fun, bought an M.Div. for ten dollars on-line and registered as a licensed minister in this state, is as qualified as I am to provide spiritual care in hospice.

How To Contact:

The Federal Register gives reminders throughout that you can electronically (not fax) submit comments to httpp://www.cms.hhs.gov/regulations/ecomments by July 26th, 2005. Mention the section you are commenting on when making your remarks.

There are significant changes for hospice and palliative care (when they become Medicare eligible). You and your administrators need to be aware of how these proposed changes, if adopted, would affect what you do and how you do what you do.

 

Thanks to Sue Wintz for bringing this to our attention.

 

Note: These proposed rules are especially important as CMS states in this document that they are working to revise not only the hospice requirements but the requirements for other health care providers, such as hospitals, home health facilities, and others. The APC Board is submitting written comments to CMS regarding the proposed changes. Those comments as well as a model response for Board Certified Chaplains to use in their own submissions will be available on the APC website. For more information, contact the APC office at info@professionalchaplains.org or Sue Wintz, Chair, APC Commission on Quality Services at sue.wintz@chw.edu.


Steve Rice, a Lutheran minister, is a chaplain and spiritual care coordinator with HomeReach Hospice at Riverside as well as a member of the Pastoral Care Department at Riverside Methodist Hospital. Steve has been providing spiritual care in the hospice setting for eighteen years. Steve is Board Certified with the APC and currently serves as a liaison for the APC with the National Hospice and Palliative Care Organization, Washington DC.

Do you have thoughts about advocacy you’d like to share with your colleagues? Send an e-mail to info@PlainViews.org.

 

Education & Research
   

 

Rabbi Julia Neuberger on answering the basic questions

 

By Books, By Writing and By Listening…

It is over twenty years since I first wrote a book about death and dying. In those days, as a pastoral rabbi in south London, with two of London’s most famous hospices within easy reach of my synagogue, I was constantly being called late at night to give the ‘last rites’to someone Jewish dying in the hospice. However many times I explained that Jews did not have last rites, it was clear that the level of ignorance –not wilful, just a fact of life –was huge.

At the same time, a small charity –the Lisa Sainsbury Foundation –was set up to teach nurses how to deal better with dying. They asked me to write a short book about how to look after dying people of whatever faith. And so I began to write. How do you look after Muslims who are dying? Sikhs? Jews? Buddhists? And so on. The first edition came out in 1986. A simple volume, it answered basic questions. Every ward in every hospital wanted a copy on their reference shelf. I was delighted. I realised that the most basic advice I had given was bearing fruit. If you do not know, ask. The patients –or their families–will be only too delighted to tell you. Time and again, nurses have told me that as a result they have felt free to ask a Muslim family, or Buddhist patient, about their desires and fears.

Later editions have added Chinese customs, and drawn distinctions between different groups of Muslims and Jews. The book has also inspired many better, more thorough, books designed to help caregivers support people from backgrounds different from theirs.

It has also had a powerful effect on me personally. Before this, I had only written short pieces –this made me enjoy writing books. Since then, I have written Dying Well, a book designed to help ordinary people as well as healthcare professionals think about achieving a ‘good death’. But I have written about women, too, research ethics, and, most recently, a book entitled The Moral State We’re In, looking at the way we treat the most disadvantaged in the UK. I’m no longer a pastoral rabbi, but the desire to preach and teach, to support the weakest and to take real care of those who are dying, or those who have severe mental illness, has never left me. For me, the most spiritual moments are those intense times with someone suffering, or someone slipping away from life, with a sense that perhaps one can help –just a little.

In our country, far less religious than the United States, people are confused religiously and seeking something spiritually. In the healthcare field, and particularly when people are facing their own death or that of someone dear to them, the desire for spiritual care is still ever present. We need professionals –healthcare professionals and chaplains –to help them come to terms with what is happening to them. By books, by writing and by listening, we have to learn to play that role for everyone, whoever they are, from whatever background.


Rabbi Julia Neuberger (Baroness Neuberger D.B.E.) is a Liberal Democrat member of the House of Lords, front bench spokesperson on health, an adviser to the trustees of the Sainsbury Centre for Mental Health and consultant to the project to establish a Jewish Community Centre for London. She is also a Trustee of the Booker Prize Foundation and writes widely on health, women's and religious issues. Her latest book is The M